Settling into a routine my first month or so on SSB Unit 54 - my meals in my room being fed by mom or a nursing aide; having range of motion exercises twice a week; playing games with another patient in recreational therapy in the mornings Monday to Thursday; and meeting with my psychologist on Friday mornings. In the afternoons was visiting with my mom and friends popping in to say hello. About this time, Kim my recreational therapist told me I will doing yoga on Mondays for an hour. I looked at her funny “ You’re kidding me? How can I do yoga when I can’t move my limbs? ” . Yoga to me was posing and stretching and it is usually for able-bodied people. That afternoon I go down to the recreational room and there were about 4 other patients there, also in wheelchairs. The type of yoga we were doing was Breathing Yoga. Basically, the therapist plays meditation music and we do breathing exercises to assist with controlling pain levels as well as decrease a person’s anxiety levels. Must ...
I never did met that special someone to share my life with me. My brother and his wife did not have any children, so never thought I could become an “auntie”. I was so wrong in my thinking. I have some dear friends who are actually more than friends - they are my sisters, they have made me feel a part of their family. Through this, I have become “auntie “ to their children. What a honour and blessing they all have been to me. So many cherished memories from when they were newborns to young adults. Watching over the years as they developed their personalities and how they interact with one another. Their cute sayings and being blunt (saying it as they see it), their wonderful hugs and when they were babies sleeping so peacefully on my chest or shoulders. As they become teenagers, watching how they are figuring out what is important to them and figuring out their future goals and dreams. My friend, Sara Paterson’s daughter Casendra, I have known her since she was a newborn, born in ...
Now that I was staying awake more with each passing day, the severity of my situation slowly became real. I found out I had a rough 6 weeks - near death, including a cardiac arrest due my bradycardia which required a temporary external pacemaker, getting blood clots in my lungs and left leg due to my PICC line, issues with low blood pressure and pneumonia. I received many treatments of IVIG (Intervenous Immunoglobulin), common treatment for this disease. Interesting I had all these complications at the same time I was having those vivid dreams. Wonder if there is a connection? When I awoke, I could not move my limbs and I did not have a voice. All I had was facial expressions to communicate. I was scared. Dr. Zuege came in my room when I was awake, he asked for his smile, which I gave him. He finally told me that I had Guillian Barre Syndrome or GBS. What the heck was that diagnosis? It seems a bacteria such as Campylobacter (found in under-cooked chicken) attacks and destr...
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