My Journey with GBS

On August 5, 2019 marked my one year anniversary of arriving to AgeCare-Skypointe continuing care facility. Here there is all levels of care which falls under the umbrella of continuing care (assisted living, supportive living, long term care with mental health issues and long term care). I am on the top floor, which I kiddingly say “I’m on the penthouse floor.” So many feelings that first day, finally being discharged after 700 days in the hospital with a warm goodbye from coworkers then welcomed to my new home by my mom, Sara and her children - Casendra, William and Elysia. The Paterson family unpacked my belongings while my mom and I did the paperwork. Sharing smiles at my first meal as Elysia tried to feed me fries. It is cute to watch.  All my medical staff have been wonderful and have made me quickly feel a part of a family. Sharing stories and plenty of laughs too. The bantering back and forth makes it feel like a normal life. I can’t say enough good things about my ass

Reality sucks! It really does. It’s like having cold water splashed on you when you weren’t expecting it. Well, for me it was one of those days where you just want to yell for everyone to hear, “Reality sucks!” Today (July 31, 2019) was a big day - I was going to have my nerve conduction test to see if there has been regeneration of my peripheral nerves. My last nerve conduction test was November 5, 2016 and that point I was only able to move the upper parts of my shoulders and could move my head slightly side to side. Seeing some improvements since starting physiotherapy in March 2019, I called my neuromuscular physician Dr White if he could re-do my nerve conduction test to see what improvements have occurred to my nerves. The day has come - feeling anxious and nervous as I didn’t know what the outcome would be. I started the morning typing a summary of the 3 previous nerve conduction tests from 2016. I must admit - how sobering reading how I was communicating and the severe dam