Posts

Showing posts from January, 2023

Living with Pain

  Pain. We endure pain in many forms. Depending on one’s tolerance, will determine if it needs to be treated. When I was abled-bodied, I basically took Tylenol for headaches or muscle pains. Even when I had gallbladder attacks, I just took Tums and a heating pad to relieve my pain.   Guillian Barre Syndrome (GBS) is a rare autoimmune disease affecting the peripheral nerves. 1-2 people per 100,000 per year are diagnosed with GBS. Depending on your GBS sub variant, will determine how to treat you or the severity of the residual effects will be. Recovery can be quick or it can take up to 2 years to recover fully. Then there are GBS survivors who after 2-3 years where residual effects become permanent (that’s me!). There are some sub variants, such as AMSAN, which will fall in the 5%-10% range of those diagnosed where recovery impacts the autonomic system and could have a life-threatening or fatal outcome (that’s me too!). Recovery outcome is poor and will have residual effects remaining