Today (September 10) marks 3 years since my life undeniably changed forever. This day I was in ICU on life support fighting to stay alive. Not knowing they journey I would have to face if I survived. Fortunate or not, the next 6 weeks I do not remember the battles I had to face - having a cardiac arrest because of severe bradycardia (slow heart rate), pneumonia, blood clots and of course paralysis from head to toe. It is through sharing with my mom and friends who were there filling me in what all occurred. Heart goes out to my mom who had bear witness to all of it but grateful for my friends who were there for me and supported my mom too. A moment in time, that Friday night after a long day in the office, I went out to buy my supper at Extreme Pita for a chicken bacon ranch pita. Who knew undercooked chicken would be the catalyst, giving me food poisoning and the stomach flu; then numbness and inability to walk a week later. How does that happen so fast? It took me a few week...
On September 22, 2018, my friend Marilyn and I had the opportunity of attending an education session at Mount Royal University hosted by the GBS/CIDP Organization. The topic was GBS and IVIG treatment (intravenous immunoglobulin). The last speaker was Dr. Chris White, a neuromuscular physician from Calgary’s South Health Campus Hospital. In his presentation he described how IVIG treatment works depending on the type of GBS variant you have. In the presentations earlier left me a bit disheartening as I keep hearing people’s questions asking, “ I have been taking IVIG treatments for the past 2 years.. ”. I thinking, “ Are you kidding me? I only got in the beginning, September 2016 and now it’s 2 years later. Has my recovery been slow because I haven’t received additional IVIG treatments while in hospital?” But Dr. Chris White’s presentation helped me turn my feelings around. There are various variants of GBS and how you use IVIG treatments depends on your variant. Okay, feeling better...
Even though it was in ICU, we made the best of it and enjoyed my visit week with Bruce. His handy skills cane in handy fixing a few things around the house my mom had noticed plus he hung up the ceiling fan for the master bedroom too. He was very kind and bought munchies for the ICU staff as a thank you for caring for me - they were so enjoyed and appreciated. Now that my O2 sats have stabilised, I was transferred back to my old room on unit 39 where I had to prepare myself to be transferred to Foothills. The first thing - learning to sit in a wheelchair. The pain was incredible - the lifting with a full body sling to the wheelchair, then the simple action of bending my knees in a sitting position. The first try I lasted 30 minutes, then I got to about 2 hours straight before the pain became intolerable. During this preparation process, another birthday has come. I never thought I would be in the hospital for a second year. My dad came to visit and enjoy my birthday celebrations to...
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